Skip to main content

Tomorrow

Tomorrow is our second sonogram for Abigail, and we're hoping for good news.  Specifically, we want to see her fluid levels stay the same and proportional to her size, and we want her to move her head up, down, and side to side.  These are the key factors to her continued development!

Tomorrow will also be our tour of the NICU and the high-risk delivery unit.  I'm trying to mentally prepare myself for this, because I know I'll see and hear things that I don't want to think about.  I think what will be the saddest part to me is the babies that don't have anyone there to love on them, which I hear is kind of the norm in a big city hospital.  I might just have to sign up to hold a few... :)  We are thankful to have gotten to schedule the tour and even more thankful that our guide will be the chief of neonatology for the hospital!  We have our list of questions ready!!  (Yes, even Matt had some!)

I was happy to have scheduled this appointment before school starts and I have to use leave, but bummed that I was "wasting" my last day with Caleb.  I sure didn't want to leave him home with someone on my last day I could have him with me!  We decided a compromise was in order and asked a reliable, wonderful teenager in our youth group if she would be willing to come with us and watch him while we had our appointments.  She happily agreed!  This way, we can still be with him and we have plans to have some fun in Annapolis afterward, complete with dinner and dessert at Chick-and-Ruth's!  Yay for making a fun day out of a day full of appointments!

If I have anything to update, I will write an Abigail's Journey blog post over the next few days...but remember, I'll be back in school come Wednesday, so time will be precious!

Please pray for us tomorrow in the following ways:
*  That Abigail's neck mobility continues to be good
*  That fluid levels stay consistent
*  That we will get lots of good information from the NICU tour and feel a peace about her going there
*  That we will be mentally prepared for the sadness of the NICU
*  That we have a great last day off as a family (+1!)  :)

Comments

ds said…
I'm praying for all those things but I'm also praying that the jaw has grown and there is no longer a problem. God can work miracles. He has a plan.

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m