Skip to main content

I'm Beginning to Really Hate Tuesdays

It was a Tuesday when I was sent home from the hospital because my insurance decided not to pay anymore, even though I was a high risk patient.

Abby went into respiratory distress on a Tuesday and was medivaced to JH.

This Tuesday, Abby was readmitted into the hospital because of wheezing and the need to increase oxygen levels.

I'm really beginning to hate Tuesdays!

So, here's the whole scoop.

I called Abby's pulminologist to see if I could bump up her appointment (originally set for the end of March), since she had had RSV.  They said that there were no available appointments, but they would put me on the waiting list. 

Then a nurse called back asking for more information about the RSV.  I filled her in and she asked if Abby was still having trouble.  I explained that Sunday night, we had needed to put Abby back on oxygen and had needed to increase it several times since then.  We'd also increased her nebulizer treatments and had taken her to her pediatrician on Monday. 

The nurse was pretty concerned and told me that she would talk to the pulminology team and call me back.  When I heard from her, she said the team wanted to see her.  The best way would be to bring her through the Pediatric ER at JH.  So, I called Matt, gathered stuff up, and off we went!  Thank goodness this wasn't an emergency this time.

After repeating the trach culture, RSV test, chest xray, and blood work, the pulminology team decided to admit her at least overnight.  This morning, it was learned that the trach culture showed a bacterial infection.

Read:  That's not good.

While they're still waiting to determine what caused the infection (it has to grow), there's definitely something there.  She's receiving IV antibiotics and being monitored.  We'll most likely be here through the weekend, but it's really up to Abby.  (Aren't most things these days up to her?!)

Soooooooooo, here we are again.  The bright side?   I'm getting lots of cuddle and play time with my girl.  She's been smiling at me a lot.  :)

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m