Skip to main content

Just in Time

Image
By
As I exaggerated the word ooooooooooopen for the seventeenth time in an effort to get Abby to give me some kind of vocalization, I couldn't help but wonder why everything has to be so hard.  Speech, feeding, walking...Abby works so much harder than most other kids and it just doesn't seem fair sometimes.

Then I checked my email tonight in the quiet after the kids went to bed, and I opened up a message from a fellow CCMS mom--a new one!  I actually read several online newspaper articles about this family right after Abby's diagnosis and emailed the writers in an effort to contact the parents, but they didn't have any information.

Isn't it just like God to not only send a CCMS mom to me, but to also send her on a day I could really use a little encouragement?  :)

I have already emailed her back and am looking forward to getting to know her better.  I'm especially excited about the prospect of meeting them one day, since they are fairly close by.  Imagine...Abby will actually meet someone who has the same diagnosis as her!!

Comments

Anonymous said…
As I read your post, I was reminded of all the times that you have written about Abby's stubbornness. God made sure she received an extra dose of tenacity because He knew she would need it! :-)

On the days when Holland just isn't where you want to be, how neat for God to send someone along to help you enjoy the tulips!

Praying for you, grateful for all God has done so far (and for your honesty in sharing the good and the bad), and looking forward to see what He will do in the future.

--Sarah (from MOPS)
April 25, 2012 at 10:51 PM
Post a Comment

Popular posts from this blog

Cerebrocostomandibular Syndrome

By
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi
10 comments
Read more

The Potty Man

By
Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!
1 comment
Read more

Lego Party: Favors

By
I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m
1 comment
Read more