Skip to main content

You Might Be a Trach Mom If...

In honor of Tracheostomy Awareness Week, I have written a little list of some "givens" if you're a trach mom.  Enjoy!

You might be a trach mom if...

*  You have ever looked into a trach tube to check for a plug and got secretions shot at you.
*  You can change trach ties while talking on the phone, holding the trach in with one hand, entertaining your trach child, and disciplining your other child all at the same time.
*  Your child and family have ever been stared at, pointed out, gaped at, or flat out laughed at...and are stronger for it.
*  You take your child to OT, PT, and Speech every week...and are the OT, PT, and Speech teacher the rest of the week!
*  You require everyone who walks into your house to wash their hands before touching your child.
*  You have ever been asked to leave a public place because the suctioning is too noisy or is disturbing other patrons.
*  Your supply company knows who you are by your voice.
*  Other people wonder how in the world you do it, and you just smile because there's a whole lot more they'll never understood.
*  You've ever thanked God for just one more day with your child.
*  You spend more time traveling to doctors' appointments than you do at your own house.
*  If the terms oxygen saturation levels, tracheal obstruction, chronic lung disease, and accidental decannulation actually mean something to you!
*  You juggle a schedule whose craziness is comparable to the president's, but your house doesn't come with secretaries.
*  You are fiercely protective of your child and will do whatever it takes to help him/her succeed.
*  Your child is a superhero!

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m