Looking Up, Looking Down

Things are looking up, and looking down.

Looking Up...
* Abby ate a lot more yesterday.

* We had great therapists for all 3 meals, so she is beginning to talk more. They are also finding out which iPad apps she really loves, and one of them is an app that repeats what you say in funny voices. It's motivating her to eat and talk!

* Last night at RMH we all really enjoyed playing with the staff from Under Armour. One of the women played in the dollhouse with Abby and she just ate up the attention! Caleb did too, because one of the guys played computer games with him. :)

* All 3 of us slept all night, which hadn't happened yet.

Looking Down...
* Because she is eating a lot more, she threw up a ton last night. Her little, tiny stomach just can't handle more than 6 oz at a time. I'm hoping that this will be enough for them to finally schedule the Upper GI I've been requesting and get her on some medicine. I really do think it will help.

* The playroom staff (where she stays between meals) has refused to take her potty during the day. They said that they have 11 kids and don't have time for that. I have asked that they just take her whenever they are taking another little girl. That hasn't happened. They don't even keep her in the Pull-Ups I bring for her--just diapers. I've now asked if I can come get her every hour and a half to take her potty myself, but they said no. Now, apparently they want to "talk" to me about the purpose of this program. I am so angry. She has to be potty trained in order to go to preschool in September, and they won't even take her to the potty. The poor kid is going to be so confused when all day they are telling her to go in her diaper and I'm actively putting her on the potty all evening. Not a happy momma...

More positives than negatives, and I'd much rather be dealing with this than a life-threatening airway issue. If fighting over potty training is the worst I have to deal with, I guess I will take it.

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use. At any rate, I wanted to share what I did for the party! It will take a few posts, so stay with me. I'll start with how I did the favors. These are the goody bags I made. I just bought solid colored gift bags and matched scrapbook paper to each bag. Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks. I put a round magnet on the back and...voila! A magnet! (note: hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons. Yes, I know this guy has lost half of his leg. The others were already packaged and I didn't want to open one up just to get a picture. I used a Lego mold to make the crayons. Caleb put small pieces of crayon in each m

Life as a Leach

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