Because He lives, I can face tomorrow...even if tomorrow is looking really, really scary.

Today was a little trial run for tomorrow! Abby got her picc line and it went perfectly. They were able to intubated the regular way with no issues...praise God! Our difficult airway days are a thing of the past, I hope! That jaw surgery was no joke, but it worked!

We were supposed to stay at the hospital tonight, but Abby did so well that they saw no reason for it. She was sooooo happy when she woke up and I told her we could go back to rmh! She enjoyed playing with her friends tonight. There are lots of kids her age here right now, which always makes it more fun. We also met another veptr family, who is wonderful! I've learned a lot from them.

Tomorrow is the big day. We have to be there at 7 am, and surgery should start at 8:30. She went in pretty late today, but I'm hoping that since she is the first surgery, she will be on time. I will update the blog as regularly as I can, but sometimes it might be a while until we hear something.

Thank you for all of your prayers for my sweet girl! She has loved the purple pictures already starting to roll in. We would be honored if you would post a picture of you (or your pets!) wearing purple! Hash tag it #purpleforabby so we can find it easily later! because she likes to look at them again and again during her recovery!

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it never wi

The Potty Man

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Lego Party: Favors

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Life as a Leach

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