Skip to main content

Post op day 2

After thinking we would be staying in the PICU another night, we moved to the surgical floor around midnight.  We have our own room!  We really love this floor and all of the familiar faces.  One of our previous nurses saw us and said she was going to wear purple scrubs tonight just for Abby!

We saw Dr. Cahill this morning.  He was expecting that Abby would have started walking by now. He is thinking Abby will go to rehab, but it's pt's call. She still is buckling when she tries to stand with support, so I'm anxious to hear what they think.

Abby was a bit restless last night.  Her heart rate and respiratory rates were high.  After moving leads and repositioning, we gave her dilaudid because I thought maybe she was hurting.  It helped.  I think I am just going to just request scheduled dilaudid today so that she is ready for pt.  I don't want her to be miserable, and it's harder to time things without the pain pump.  She is definitely in a lot of pain with any movement. But, every day gets a little bit better!  We have her wheelchair ready so that we can hopefully escape to the playroom for a little while today, but PT has to come before we do that.

Comments

Mary Lou said…
Julie....
"We saw Dr. Cahill this morning. He was expecting that Abby would have started walking by now. He is thinking Abby will go to rehab, but it's pt's call. She still is buckling when she tries to stand with support, so I'm anxious to hear what they think." Hang in there, Mama!! ;)
"Abby was a bit restless last night. Her heart rate and respiratory rates were high. After moving leads and repositioning, we gave her dilaudid because I thought maybe she was hurting. It helped. She is definitely in a lot of pain with any movement. But, every day gets a little bit better!" Poor little girl!! :-(
Hugs and prayers!! ;-D
We're gettin' there. We're not there yet. But we're gettin' there! --Bruce Springsteen
"Stay hard, stay hungry, stay alive", Raelyn

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m