Skip to main content

Sharing Abby's Story


We have loved every opportunity we have had to share Abby's story with others.  God has used this journey in ways we couldn't have imagined and we are thankful for the chance to tell others about the miracles He has performed in Abby's life!

This is the original story written in November 2011 about Abby.  It focuses on how we used social media to learn about her diagnosis and meet others with CCMS.

This is the same story, but with some pictures.  This is the one that was printed in our local newspaper.

Here is a story that was featured in Life Site news, a pro-life organization, in February 2012.

I wrote a guest post for Moms of Miracles about Abby's syndrome in January 2012.  The blog focuses on a rare disease or syndrome each week in hopes of connecting other parents.

This is another guest post I wrote for Carter's Hope in February 2012.

Rare Love is a Facebook group I started for families dealing with rare diseases.

Here is an article written about our team for The Red Shoe Shuffle.

This is a news clip Abby and I did for The Red Shoe Shuffle to benefit The Ronald McDonald House of Baltimore.

This is a digital version of the magazine Chesapeake Family.  A story about the Ronald McDonald House's 30th anniversary is in it, and our family was interviewed.

The Global Genes Project is an organization that spreads awareness of various rare diseases.  We were interviewed about Abby and they included pictures.



Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m